www.silverribbon.org
|
FAQ What is PDD - NOS? Persuasive Developmental Disorder – Not Otherwise Specified "PDD-NOS is a 'subthreshold' condition, in which some conditions of autism or a similar pervasive developmental disorder can be identified, while other conditions cannot be identified. Especially common is difficulty interacting with peers." Wikipedia Definition Yale Developmental Disabilities Clinic Link Why is NLD called an “Invisible Disability”? Individuals who live with NLD frequently appear high functioning and challenges are often not readily evident to an observer. Because NLD is often not apparent to the outside world due to individuals’ strong intelligence and compensatory skills disguising the disability; it is referred to as an “invisible disability”. Cal Montgomery from Ragged Edge Magazine has a detailed explanation of the phrase “invisible disability” in his column. "When non-disabled people look at 'the disabled', they see wheelchairs and picture-boards. They see helmets and hearing aids and white canes. With a few exceptions, they don't pick up on how individuals differ from one another; they notice the tools we use. And these tools, to the general public, equal 'disability.' Venture out without a well-known tool, and your disability is 'invisible' or 'hidden.'" A complete copy of this feature can be found at Ragged Edge Magazine Another interesting column can be found at Not Done Living. Where can I learn more about IEP’s and Special Education? The Special Education system is a complicated system. Advocating for your child/loved one means that you must become well versed in special education law and your child’s rights. There are numerous websites that can help you. I have listed a few that I have found helpful. Wrights Law - Special Education Law and Advocacy Office of Special Education and Rehabilitative Services Council for Exceptional Children Least Restrictive Environment Coalition Families and Advocates Partnership for Education Additionally, there are several publications that address Special Education. I have found From Emotions to Advocacy by Pam and Pete Wright (2004) to be an invaluable source. Are there support groups for Individuals and/or families of NLD? If you join the NLD-in-Common group online (see resources) you will not only learn of NLD support groups that meet in several states but will also have excellent online support!
Also, ASPEN (Asperger Syndrome Education Network) has included NLD to
their mission and their website offers support and information.
"ASPEN® is a volunteer 501(c)3 non-profit organization headquartered in New Jersey. Our 15 chapters provide families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities: What are social stories and comic strip conversations? "Social Stories are a tool for teaching social skills to children with autism and related disabilities. Social stories provide an individual with accurate information about those situations that he may find difficult or confusing. The situation is described in detail and focus is given to a few key points: the important social cues, the events and reactions the individual might expect to occur in the situation, the actions and reactions that might be expected of him, and why. The goal of the story is to increase the individual’s understanding of, make him more comfortable in, and possibly suggest some appropriate responses for the situation in question." (see first link) Sample stories and guidelines for writing can be found at http://www.polyxo.com/socialstories/introduction.html#whatare http://www.udel.edu/bkirby/asperger/socialcarolgray.html Comic Strip Conversations are similar to social stories with “illustrations, symbols” and formatted in comic strip fashion. http://journals.sped.org/EC/Archive_Articles/VOL.36NO.2NovDec2003_TEC_Glaeser36-2.pdf |
The illustrations on this site are the copyrighted work of James J. Kelewae and may not be reproduced.
For permission to reproduce material from this site, please contact us.